Libbi-Faith suffered a brain injury during her birth when she was starved of oxygen for around twenty minutes. She only had a very weak heart beat but thankfully she was worked on and soon resuscitated. Libbi had to lay on a cooling mat for seventy two hours to reduce the damage done to her brain, these hours were extremely hard for us as a family as they were filled with such uncertainty.
Libbi wasn’t given very much hope for survival, we were told that she would only survive for a matter of hours certainly not days, weeks, months or years and if she did, she would have severe brain damage and would not progress.
At three weeks old, Libbi was transferred to a children’s hospice for end of life care. We stayed there for six weeks where we were trained to care for Libbi’s needs. We came home for one night and she was admitted to hospital with double pneumonia before we were transferred straight back to the hospice. After three months we eventually came home as a family.
Libbi is now nine years old and is making some progress. Libbi needs support with everything most of us take for granted, she needs support sitting unaided, standing, walking, talking, dressing, personal care and is fed via a gastrostomy tube.
We are fundraising for Libbi and have now become a registered charity (Charity Number 1164473). We are using Just4Children to help raise funds for Libbi to access some tailored physio therapy. This will help her to improve her head control and core strength so hopefully she will be able to sit unaided and, with continued progress, stand and walk too. We would like to access some of the specialist physiotherapy within the UK whilst also travelling to the NAPA Centre in the US where some of the therapies offered can be truly life changing for the individuals.
Unfortunately, due to the limitations the NHS face, they cannot provide Libbi with the intensive therapy she needs. Libbi does get some physio therapy at school but this is limited due to staff child ratios.
Libbi is a happy little girl with a smile which wins the hearts of everyone she meets. Libbi faces challenges every day and we are hoping that with the right support we can help her improve in all areas of her development and make life a little easier for her.
Please help us help Libbi-Faith. Please donate by clicking the Just Giving link below. Thank you.
You can also donate from your phone by texting
NAPA60 £5 to 70070.
There are no additional charges to your network and every penny goes towards Libbi’s fund. Thank you.
Libbi-Faith's Fab Journey 